Myeloma Patient Associations
Are you a patient or a relative seeking information about multiple myeloma? Here we list reliable sources about multiple myeloma and links to patients organization in our member countries.
Denmark
-
Dansk Myelomatose forening
-
Kræftens Bekæmpelse - Myelomatose
https://www.cancer.dk/myelomatose-knoglemarvskraeft/
Sweden
-
Cancerfonden – Myelom
https://www.cancerfonden.se/om-cancer/cancersjukdomar/myelom
-
Blodcancerförbundet
https://www.blodcancerforbundet.se/myelom
Norway
-
Benmargskreft (myelomatose) – Fra helsenorge.no levert av Kreftforeningen
https://helsenorge.no/sykdom/kreft/benmargskreft-myelomatose
-
Myelomatose – Fra Norsk helseinformatikk
https://nhi.no/sykdommer/blod/beinmargssykdommer/myelomatose/
-
Blodkreftforeningen – Norsk pasientorganisasjon
https://www.blodkreftforeningen.no
-
Oslo myelomatosesenter – studier som foregår i Helse Sør-Øst
https://www.ous-research.no/myeloma/
Finland
-
Suomen Syöpäpotilaat ry:n myelooma-verkosto
https://www.syopapotilaat.fi/potilasverkostot/myelooma-potilasverkosto/
-
Tietoa myeloomasta suomeksi (potilaille)
https://www.syopapotilaat.fi/opas/multippeli-myelooma-potilaan-opas/
Lithuania
-
Asociacija Kraujas (Patient organization homepage)
Information in English:
Patient education: Multiple myeloma (The Basics)
Patient education: Multiple myeloma symptoms, diagnosis, and staging (Beyond the Basics)
Patient education: Multiple myeloma treatment (Beyond the Basics)
Patient education: Hematopoietic cell transplantation (bone marrow transplantation) (Beyond the Basics) https://www.uptodate.com/contents/hematopoietic-cell-transplantation-bone-marrow-transplantation-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link